We represent the International Bureau for Epilepsy (IBE) in Africa. The IBE improves the social condition and quality of life of people with epilepsy and those who care for them with a a vision of the world where everywhere ignorance and fear about epilepsy are replaced by understanding and care. Established in 1961 and headquartered in Dublin Ireland, the IBE is an international organization (NGO) for epilepsy organisations that exist to provide support for a strong global network, encourage the development of new chapters in underserved areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision. IBE strategic priorities are to ensure that epilepsy is recognized as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected where they might live; that people with epilepsy are empowered to maximize quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted. For further details: https://www.ibe-epilepsy.org. We also work closely with associations of the International League Agaist Epilepsy (ILAE).
In Africa, IBE has member chapters in 22 countries. Chapters are registered and recognised in their countries. IBE chapters prioritise the social aspects of epilepsy and provide programs to dispel myths, reduce stigma and increase the seizure knowledge of persons living with epilepsy. Every four years the chapters elect four individuals who form the African Regional Executive Committee (AREC). The role of AREC is to coordinate affairs in the region. For further details: https://www.ibe-epilepsy.org/about/regional-committees/africa/

Motto
YES to prevention. YES to inclusion. NO to stigma. NO to exclusion.
 

Our Mission
To work together with interested parties in order to improve the quality of life of people with epilepsy in Africa.

Our goals are:

  • To advocate for prevention of epilepsy
  • To advocate for prioritization of epilepsy by governments and regional organizations
  • To do, support and encourage awareness to reduce epilepsy stigma and knowledge gap
  • To support and encourage treatment to reduce epilepsy stigma and knowledge gap
  • To provide models for managing epilepsy
  • To advance training and sharing of information on the continent
  • To provide a platform for people with epilepsy and their associations to be heard
  • To promote the accessibility of services, human rights and dignity of people with epilepsy
  • To do, support and encourage research into epilepsy
  • To strengthen associations promoting rights and services for people with epilepsy and their families
  • To coordinate the work of epilepsy associations in Africa and to represent their collective interests.

OUR COMMITTEE

Dr Jacob Mugumbate, Zimbabwe

CHAIRMAN

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Youssouf Noormamode, Mauritius

VICE-CHAIRPERSON

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Betty B. Nsachilwa, Zambia

SECTRETARY

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Radcliffe D. Lisk, Sierra Leone

MEMBER

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Kenneth Nsom, Cameroon

MEMBER

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Grace N. Moyo, Zimbabwe

MEMBER

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