We represent the International Bureau for Epilepsy (IBE) in Africa. The IBE improves the social condition and quality of life of people with epilepsy and those who care for them with a a vision of the world where everywhere ignorance and fear about epilepsy are replaced by understanding and care.
Established in 1961 and headquartered in Dublin Ireland, the IBE is an international organization (NGO) for epilepsy organizations that exist to provide support for a strong global network, encourage the development of new chapters in under-served areas of the world, and to encourage communication and collaboration among all members so as to meet our mission and vision.

IBE’s strategic priorities are to ensure that epilepsy is recognized as a health priority worldwide; that the human and civil rights of people with epilepsy are enhanced and protected where they might live; that people with epilepsy are empowered to maximize quality of life; and that research into prevention, treatment, care and consequences of epilepsy are promoted. We also work closely with associations of the International League Against Epilepsy (ILAE).

In Africa, IBE has member chapters in 22 countries. Chapters are registered and recognised in their countries. IBE chapters prioritise the social aspects of epilepsy and provide programs to dispel myths, reduce stigma and increase the seizure knowledge of persons living with epilepsy. Every four years the chapters elect four individuals who form the African Regional Executive Committee (AREC). The role of AREC is to coordinate affairs in the region.

Our Motto

YES to prevention. YES to inclusion. NO to stigma. NO to exclusion.
 

Our Mission

To work together with interested parties in order to improve the quality of life of people with epilepsy in Africa.

Our goals are:

  • To advocate for prevention of epilepsy
  • To advocate for prioritization of epilepsy by governments and regional organizations
  • To do, support and encourage awareness to reduce epilepsy stigma and knowledge gap
  • To support and encourage treatment to reduce epilepsy stigma and knowledge gap
  • To provide models for managing epilepsy
  • To advance training and sharing of information on the continent
  • To provide a platform for people with epilepsy and their associations to be heard
  • To promote the accessibility of services, human rights and dignity of people with epilepsy
  • To do, support and encourage research into epilepsy
  • To strengthen associations promoting rights and services for people with epilepsy and their families
  • To coordinate the work of epilepsy associations in Africa and to represent their collective interests.

COMMITTEE MEMBERS

Vice-President, IBE Africa

Action Amos,
Malawi

Mr. Amos Action, a person with epilepsy, is the Vice President of the International Bureau of Epilepsy Africa Region.
He possesses an MSc in Leadership and Sustainability, a Postgraduate Diploma in Disability Management and Rehabilitation and a BA in Development Studies.  He is also a Director for the African Disability Alliance.  Amos volunteers as a Technical Advisor for the National Epilepsy Association of Malawi. He is also a Researcher attached to the University of Edinburgh.

Vice-Chairperson

Youssouf Noormamode,
Mauritius

Youssouf is the head of the epilepsy chapter in Mauritius. He has a Higher School Certificate from University of Cambridge and professional qualifications ILO Diploma in Project Management and Diploma in Legal Studies awarded by the American Legal School Scranton

Secretary

Betty B. Nsachilwa,
Zambia

Betty is proud to be one of the founding members of the Epilepsy Association of Zambia (2001). Betty is a Personal Secretary with qualifications in Personnel Management and Industrial Relations. She works for the Government of Zambia

Member

Dr. Radcliffe D. Lisk,
Sierra Leone

Dr. Lisk heads the epilepsy program in Sierra Leone. He is the Chairman of the Sierra Leone Chapter and Vice President of the College. He is presently a visiting professor at the College of medicine (COMAHS) at the University of Sierra Leone and has served as a Consultant neurologist at Basildon University Hospital in Essex, England where he started the first Epilepsy clinic in 2004.

Member

Kenneth Nsom,
Cameroon

Kenneth is the chapter head for epilepsy in Cameron. He has lots of knowledge on epilepsy acre and its management and has been quite instrumental in supporting the visibility of epilepsy in his country.

Member

Grace N. Moyo,
Zimbabwe

Grace is a young person living with epilepsy and a strong advocate for epilepsy in her country, Zimbabwe