A Journey of Hope, Support, and Change for Persons Living with Epilepsy

Feature Story by Moses Nderemani – IBE Africa Communication Officer

Addis Ababa, Ethiopia – In a bustling city known for its rich culture and vibrant atmosphere, a remarkable organization called CareEpilepsy has emerged as a beacon of hope for individuals living with epilepsy. Founded in 2015, CareEpilepsy stands as the only non-governmental and non-faith-based charitable organization in Ethiopia dedicated to supporting and empowering those affected by this neurological condition.

Epilepsy, a condition characterized by recurrent seizures, affects millions of people worldwide, yet it often remains shrouded in stigma and misunderstanding. Recognizing the urgent need to address this issue, a small group of passionate individuals joined forces to create CareEpilepsy and bring about lasting change.

What sets CareEpilepsy apart is its unwavering commitment to providing holistic support and breaking down the barriers faced by people with epilepsy. From the very beginning, the organization has aimed to offer comprehensive care that goes beyond medical treatment, addressing the emotional, social, and economic aspects of living with the condition.

One of the pivotal goals of CareEpilepsy is to create awareness and dispel the myths surrounding epilepsy in Ethiopian society. By conducting extensive community outreach programs, organizing educational campaigns, and engaging with local schools, the organization has played a crucial role in changing public perceptions. Through these efforts, they aim to foster a culture of empathy, understanding, and inclusion.

CareEpilepsy’s impact extends far beyond awareness-raising. The organization also provides vital support services to individuals and families affected by epilepsy. Their team of dedicated professionals offers counseling, guidance, and educational resources to empower those living with the condition. By equipping individuals with the knowledge and tools they need to manage their epilepsy effectively, CareEpilepsy helps them lead fulfilling lives and overcome the challenges they face.

Moreover, CareEpilepsy recognizes the importance of community and peer support. The organization facilitates support groups, where individuals with epilepsy can connect with others who understand their experiences. These groups serve as safe spaces for sharing stories, exchanging advice, and finding solace in the company of those who have walked a similar path.

A testament to CareEpilepsy’s success is the transformative impact it has had on the lives of individuals living with epilepsy. Take the inspiring story of Selamawit, a young woman who had faced discrimination and limited opportunities due to her condition. Through the support and guidance provided by CareEpilepsy, Selamawit gained confidence, acquired new skills, and even secured employment. Her journey is just one of many examples that highlight the transformative power of CareEpilepsy’s holistic approach.

As the organization continues to grow and evolve, its vision remains steadfast: to create an inclusive society where individuals with epilepsy are treated with dignity, respect, and understanding. CareEpilepsy’s impact is not only changing lives but also reshaping the narrative surrounding epilepsy in Ethiopia.

Today, CareEpilepsy stands as a shining example of the extraordinary things that can be achieved when compassion, determination, and expertise come together. Through their unwavering commitment to empowering individuals living with epilepsy, CareEpilepsy is making a profound difference in the lives of countless Ethiopians, breaking down barriers, and paving the way for a brighter, more inclusive future.

In a world where epilepsy is often overshadowed and misunderstood, CareEpilepsy stands as a ray of hope, illuminating the path towards a more compassionate and supportive society. With their pioneering work, they are not only changing the lives of individuals living with epilepsy but also challenging societal norms and creating lasting change.