IBE - International Epilepsy Support

Golden Lights at the 34th International Epilepsy Congress

The IBE Golden Light Awards are an opportunity to recognize and reward young people affected by epilepsy – either because they have epilepsy or have made a significant positive impact on the lives of others who have the condition. The aim is to show that people with epilepsy do not have to be defined by their epilepsy but who embrace the call of the International Bureau for Epilepsy to ‘bring epilepsy out of the shadows and into the light’.

This year 19 worthy candidates, 5 from Africa, nominated by their chapters, will be presented with their awards during the IBE Day at the 34th International Epilepsy Congress in September. By attending the virtual symposium, you will have the opportunity to hear them recount their remarkable stories and see them receive their award.

The IBE Day takes place on Wednesday, September 1st and you can find out more about the programme and how to register at: https://www.ibe-epilepsy.org/ibe-day-2021/

IBE - International Epilepsy SupportMohan Dike, Nigeria

Dr. Mohan Dike joined the Epilepsy Association of Nigeria in July, 2016. Together with Dr S.E. Nwakwue he created a group for youth action against epilepsy which helps to raise awareness among young people and medical students and has since gone on to establish multiple epilepsy centres in his country.
Mohan has been involved in many presentations and support groups to make sure that epilepsy is pushed up the political agenda in Nigeria and in order to bring about change at government level.
 Read Mohan’s story here

IBE - International Epilepsy SupportPraise Bessong, Cameroon

Praise’s epilepsy originated as a result of falling and hitting her head at the age eighteen months. Praise describes the negative impact that epilepsy has had on her life and her mental health: “Epilepsy brought me low self-esteem, lack of confidence, stigmatization, abandonment, traumatization and demoralization a lot.” Through careful management, Praise has been able to turn this around. There has been a huge improvement in her seizure frequency and severity, and she is now studying English Modern Literature at university. Read Praise’s story here

IBE - International Epilepsy SupportSophie Nabukenya, Uganda

Meet Sophie Nabukenya from Uganda, a volunteer with the Purple Bench Initiative.
“My dream is the whole world to understand that epilepsy is a disease like any other; people living with it are not bewitched, demon-possessed or insane. They can achieve every one of their goals if they seek and adhere to their medication, stop pity-parties,work hard and believe in themselves like I do.”
Read Sophie’s story here

 

IBE - International Epilepsy SupportBright Bwalya, Zambia

Bright M Bwalya is a 29 year old epilepsy and mental health advocate, poet, innovator and entrepreneur living with epilepsy. Bright was diagnosed in 2016, a year before finishing university. Multiple daily seizures placed a huge strain on his studies but as his dissertation Bright developed a mobile application for people with epilepsy or convulsive disorders and for the general public.
A passionate advocate, Bright explains, “Even if I am not cured, I am proud to have the strength and be a beam of light to those still in the dark about this condition, for them, I will be strong and be Bright.” Read Bright’s story here

IBE - International Epilepsy SupportFred Beuchi, Kenya

Fred is the secretary of the National Epilepsy Coordination Committee in Kenya. He is inspired by his youngest sister Mercy Kwekwe Mboya, who was diagnosed with epilepsy at the age of 2 years following cerebral malaria. Fred is also a counselor and his background in theology has enabled him inspire and give hope to hundreds of youth living with epilepsy. Recently, Fred organized and participated in an Epilepsy Awareness Challenge involving a 3 day, 327km cycle and climbing Mt. Kilimanjaro. Read Fred’s story here

 

 

To see all winners : https://www.ibe-epilepsy.org/goldenlightawards2021/